Another Mom’s Take on the Magic Pill
01 May 2010 Leave a comment
in Mama thoughts Tags: autism, cure, family, life, magic, pill, ronan james, what would mama do
To “Cure” or not to “Cure” – That is the question
24 Mar 2010 2 Comments
in mom thoughts Tags: art, autism, cure, development, family, life, medicine disability, not cure heal health, opposing view, ronan james, slappin' bitches
**REPOST** But since Autism Awareness month is coming up…why not?
This is a subject that I’ve debated blogging about for quite a while. Semantics aside, there is an intensely passionate volley of opinions to do with this issue.
Sometimes, I am pretty sure where I stand on this debate of whether to use the term “cure” autism or not.
Other times, I have no freaking idea.
Here’s what I am sure about.
Everyone is entitled to their own opinion, feelings, thoughts and ideas. To judge someone based on these things, to me, really makes no sense.
How can one judge when one hasn’t seen, heard or felt the same? This is what I base my opinions on.
Ronan has had his own unique path through autism spectrum, and we as parents and family have traveled our own, too.
What exactly is this “autism spectrum” anyway? Is most of it a form of unique personality? Is it a neurological disorder/disability/assault/ damage????? These are things I ponder on a daily basis.
When I think about “cure”, what comes to mind immediately is, “would this end anxiety, stress, discomfort in social situations, the difficulty expressing what HE IS FEELING to the point of extreme and utter meltdown, and would he be saved one minute of frustration or sadness?
Would this help with his digestive distress? His auto-immune sensitivity? Would this be something that would give him the confidence to relate to others if he really wanted to, but was afraid to because he didn’t exactly seem to know where to find the words?
In opposition, would this be something that would take away his beautiful artistic expression?
Would it eliminate his insane word-decoding ability? Would he be indifferent to the funny and quirky things that make him laugh for two hours now (and I’m sorry, but I love this about him!)?
Would it take away his beautiful, intricate vision on life, people and music?
Would his IQ drop below genius level?
Would he be another Ronan with less defining characteristics, or the same Ronan with less pain?
I wonder about all of these things.
But what I do know. What I’m sure of…
I want him to have the choice.
Fix You
10 Apr 2009 4 Comments
in Mama thoughts Tags: art, autism, chris martin, coldplay, cure, emotional, family love life, fix you, happy, my heart breaks when I hear this song, pms, ronan james
This song is probably about some junkie girlfriend that Chris Martin was trying to save, but back when I was SO obsessed with “fixing” Ronan, this song would make me bawl in 2 seconds flat.
It started playing on my ipod today, and I cried in 3 seconds flat. It’s a new record for Mama!
Even though my focus has changed from “fixing” to “making happy”…it’s still raw emotion for me with this tune.
And now, for your PMS pleasure…
Fix You by Coldplay
When you try your best but you don’t succeed
When you get what you want but not what you need
When you feel so tired but you can’t sleep
Stuck in reverse.
And the tears come streaming down your face
When you lose something you can’t replace
When you love someone but it goes to waste
Could it be worse?
Lights will guide you home
And ignite your bones
And I will try to fix you
And high up above or down below
When you’re too in love to let it go
But if you never try you’ll never know
Just what you’re worth
Lights will guide you home
And ignite your bones
And I will try to fix you
And the tears stream, down your face
When you lose something you cannot replace
Tears stream down your face and I…
And the tears stream, down on your face
I promise you I will learn from my mistakes
Tears stream down your face and I…
Lights will guide you home
And ignite your bones
And I will try to fix you
p.s. Doesn’t Chris Martin even look a little like grown Ro? lol
Here’s Lowie making Ro happy! lol