For the love of God! When will this child sleep?! **A Repost From Way Back! Because His Butt Still Don’t Sleep!**

The first night he was born, the nurses kept bringing Ronan into my room.

“He won’t stop crying.  Sorry, hon.  Maybe you should try to nurse him again.”

This went on only every ten minutes or so, until I just said, “Oh, alright already!  Just sleep in my bed with me!”

Thus began a new circle of life for Mami, parent of “The Baby Who Never Sleeps.”

Ditties (the nickname for my boobies), sleep.  Remove ditties, wake up.  Ditties, sleep.  Remove ditties, wake up…and on and on and on.  This lovely cycle was broken up by intermittent hours of filming infant Ronan with one of those old clunky cassette video recorders propped up on the couch at various times in the a.m., when only bats, owls, and other nocturnal animals roam the earth.

I began to look like one of them.  My eyes were black-rimmed.  I was in a zombie-like daze, walking into walls and forgetting proper hygiene (like actually washing myself), and I was obsessed with finding ways to get him to actually sleep without being attached to the ditty.

The Ferber Method = cry until vomit, then cry more.  Never stop crying.  Vomit.  Cry.

Daddy walking and rocking, then slipping Ronan quietly into his crib = bolting upright in 0.001 second flat.  Screaming. Vomiting.

The No Cry Sleep Solution = Ha Ha Ha Ha, yeah right.

For two years, I just caved and gave the ditty.  I learned how to sleep like a fugitive in an escape tunnel, one arm had to curl around the top of his head.  Ditty had to be fully accessible.  Pillows were aplenty, and positioned just so, to support my frozen frame.  As long as I didn’t move – at all – Ronan would sleep, nurse, sleep, nurse, and maybe some nights, he wouldn’t wake up for his 4-hour a.m. stretch.

When I finally decided to wean him (at over 2 years old – that’s another post in itself), a new cycle began in the life of Mami.

It was called, “The Child Who Never Sleeps”

Snuggle with Ronan in his bed until he falls asleep.  Wrench your body out from under his digging feet at 1 cm per hour.  Finally get out of the bed.  Lay in your own bed.  Roll over to finally sleep and immediately see a small figure hovering over you.

Walk back into child’s room.  Repeat.  4 nights out of the week, shoot footage of owl child awake with brand new fancy digital camcorder.

Flash 5 years forward, and I am still walking Nosferatu back and forth to his bed.  Still a zombie.

Everything from melatonin, vigorous exercise, magnesium, joint compression, and a trillion other things have been tried.

I have pretty much resigned myself to the idea of being an old, crabby, gray zombie.  Then we’ll call him …

“The Man Who Never Sleeps”

Feel free to send me your suggestions, please, for the love of GOD!

sleep.jpg

P.S. Don’t let this picture fool you!  I tried to trick him up by putting his little brother beside him to snuggle…maybe they’ll find comfort cuddling each other, and he won’t come looking for me!

Yeah, right.  5 minutes after I took this picture, he was hovering over me…THE CHILD WHO NEVER SLEEPS!!!!!

SHIT, BITCH, DIE. THERE, I SAID IT!

Welcome to the new “testing of limits” that we have been experiencing lately! 🙂

Ro has an uncanny knack of figuring out what really gets to someone, and then he unleashes it on them – sometimes, just to get a reaction for his own amusement, other times it’s to test limits, and then sometimes it’s just to punish your ass when you wrong him! lol

This particular limit-testing (or self-amusement) has been tailored just for Mama’s benefit!

Hmm, you don’t want me to say BITCH?  Ha ha!  Bitch it is!  Shit?  Oh, now I will throw a thousand and one SHITS at you!

Die?  You don’t want me to talk about dying?  I will now shout DIE, DYING and DEATH over and over again (especially at playgrounds where little kids will whip their heads around in reaction, and their parents will give me and my Mama the side-eyed “what you talking about Willis” stare).

I will not even type the new offensive word that he discovered for my shock benefit.  He only said it once, and then I cried, so he really got that saying this one was off the table, thankfully.

What has been working (somewhat) for us is having him go into his room whenever he feels the need to repeat said offending words.  He doesn’t enjoy being limited in his environment, so a timeout in his room will usually curtail the shits and bitches, but oy, it’s a trying time when we have to leave the grocery store (after 20 bitches, shits and dies) before Mama gets the tasty food on her list!  Like Joey…Mama doesn’t share food!!!!  So, this is not a particularly good experience!

Hopefully, you will laugh at my sharing of this someday, Ro, because it is quite funny (but not when I have to leave my Fage in the cart because a Nana in Market Basket is about to flap back onto the linoleum after hearing you yell BITCH at the top of your lungs!).

XOXOXO

Another Mom’s Take on the Magic Pill

An interesting look at another mother’s thoughts of “curing” her now adult son with a magic pill…

http://blog.gbrettmiller.com/his-decision-not-mine/

To be honest, I’m glad that we’re not faced with it yet.  I’m not sure what I would do, but if and when the time comes, it would definitely be nice to say, “Ask him!”

The Boys of the Day.

This pic isn’t the best quality, but I love how real it is.  Lowie is biting his nails, and Ro is relaxed and just watching.  These are the simple moments that make me pause……..

I’m a lucky Mama.

CARD Founder on “The Doctors” This Friday.

Doreen Granpeesheh will be on The Doctors this Friday!  She did an evaluation on Ro in Tarzana, CA when he was 2, and she was fabulous.  I can’t wait to see what she says…

Click on the link below for the info….

http://www.thedoctorstv.com/main/show_page/D2151

Lucky.

**THANKS TO THE TRAY FOR LETTING US BORROW THIS…IT IS AN ELABORATION ON MAMA’S USUAL SLAP-DOWN TO WHINING (MY OWN INCLUDED), WHICH CONSISTS OF: AT LEAST I DON’T LIVE IN DARFUR!**

SERIOUSLY?!

**REPOST** Just because I cannot believe how big my Ro is now.  Wah.

How delicious was the baby Ro?!!!!

WORLD AUTISM AWARENESS DAY!!!

DON’T FORGET TO WEAR YOUR

BLUE!!!!

Loudon and Blue are wearing blue today!!!

To “Cure” or not to “Cure” – That is the question

**REPOST** But since Autism Awareness month is coming up…why not?

This is a subject that I’ve debated blogging about for quite a while.  Semantics aside, there is an intensely passionate volley of opinions to do with this issue.

Sometimes, I am pretty sure where I stand on this debate of whether to use the term “cure” autism or not.

Other times, I have no freaking idea.

Here’s what I am sure about.

Everyone is entitled to their own opinion, feelings, thoughts and ideas.  To judge someone based on these things, to me, really makes no sense.

How can one judge when one hasn’t seen, heard or felt the same?  This is what I base my opinions on.

Ronan has had his own unique path through autism spectrum, and we as parents and family have traveled our own, too.

What exactly is this “autism spectrum” anyway?  Is most of it a form of unique personality? Is it a neurological disorder/disability/assault/ damage?????  These are things I ponder on a daily basis.

When I think about “cure”, what comes to mind immediately is, “would this end anxiety,  stress, discomfort in social situations, the difficulty expressing what HE IS FEELING to the point of extreme and utter meltdown, and would he be saved one minute of frustration or sadness?

Would this help with his digestive distress?  His auto-immune sensitivity?  Would this be something that would give him the confidence to relate to others if he really wanted to, but was afraid to because he didn’t exactly seem to know where to find the words?

In opposition, would this be something that would take away his beautiful artistic expression?

Would it eliminate his insane word-decoding ability?  Would he be indifferent to the funny and quirky things that make him laugh for two hours now (and I’m sorry, but I love this about him!)?

Would it take away his beautiful, intricate vision on life, people and music?

Would his IQ drop below genius level?

Would he be another Ronan with less defining characteristics, or the same Ronan with less pain?

I wonder about all of these things.

But what I do know.  What I’m sure of…

I want him to have the choice.

Ro, in a rare moment where he is actually not awake and blissfully unaware of this debate. "Let me sleep, fools!"

BOUNCE FOR AUTISM!

The Autism Society is sponsoring these events at Pump It Up for Autism Awareness Month.  Ro LOVES Pump It Up!  Cool way to raise money for autism awareness.  Hopefully, it goes to the right place – it’s getting harder and harder to make sure that your hard-earned dollars are going to where they should with charities.

Anyway, at least it brings awareness to a good cause.  Click below.

http://www.autism-society.org/site/PageServer?pagename=bounce_landing

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