To “Cure” or not to “Cure” – That is the question

**REPOST** But since Autism Awareness month is coming up…why not?

This is a subject that I’ve debated blogging about for quite a while.  Semantics aside, there is an intensely passionate volley of opinions to do with this issue.

Sometimes, I am pretty sure where I stand on this debate of whether to use the term “cure” autism or not.

Other times, I have no freaking idea.

Here’s what I am sure about.

Everyone is entitled to their own opinion, feelings, thoughts and ideas.  To judge someone based on these things, to me, really makes no sense.

How can one judge when one hasn’t seen, heard or felt the same?  This is what I base my opinions on.

Ronan has had his own unique path through autism spectrum, and we as parents and family have traveled our own, too.

What exactly is this “autism spectrum” anyway?  Is most of it a form of unique personality? Is it a neurological disorder/disability/assault/ damage?????  These are things I ponder on a daily basis.

When I think about “cure”, what comes to mind immediately is, “would this end anxiety,  stress, discomfort in social situations, the difficulty expressing what HE IS FEELING to the point of extreme and utter meltdown, and would he be saved one minute of frustration or sadness?

Would this help with his digestive distress?  His auto-immune sensitivity?  Would this be something that would give him the confidence to relate to others if he really wanted to, but was afraid to because he didn’t exactly seem to know where to find the words?

In opposition, would this be something that would take away his beautiful artistic expression?

Would it eliminate his insane word-decoding ability?  Would he be indifferent to the funny and quirky things that make him laugh for two hours now (and I’m sorry, but I love this about him!)?

Would it take away his beautiful, intricate vision on life, people and music?

Would his IQ drop below genius level?

Would he be another Ronan with less defining characteristics, or the same Ronan with less pain?

I wonder about all of these things.

But what I do know.  What I’m sure of…

I want him to have the choice.

Ro, in a rare moment where he is actually not awake and blissfully unaware of this debate. "Let me sleep, fools!"

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2 Comments (+add yours?)

  1. KR
    Mar 29, 2010 @ 03:59:37

    I get very upset when the words “cure” and “autism” are used together. jenny mcarthy and her foolish ramblings can steam me up for hours. i will say, that if any parent is gonna find the “cure” i would put money on you and your dedication…. i want all my “ronans” to have a choice as well, but i love him for who he is and he makes me a better person & therapist. 🙂 PS. i love that picture, such a gorgeous soul, inside and out.

    Reply

  2. ronanjames
    Mar 29, 2010 @ 12:52:03

    Aww, so true, and well said!! Thanks Miss R!! He is lucky to have you 🙂

    Reply

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