Myautismteam.com. Mami likey!

I LOVE this site!  Immediately go to myautismteam.com and sign up.  Then begin receiving support and share resources with others touched by ASD!  I have so far shared stories and advice, gotten great advice and read amazing stories that I could relate to, and I’ve set up a team for others to reference and be assured by!  Amazing concept all in one place of which I have been searching for for years.  Go.  Now.  Benefit.  Help.

GOT TANTRUMS? GET GORILLA NEST!

Tantrums are one of the harder aspects to deal with when it comes to most spectrum kids.  At least in this Mama’s opinion.

You can read, research, practice, etc., etc., but when a big one really hits (literally – hee hee), it can be very hard to access all of what you’ve learned – much like the processing of our kiddos!

After a particularly rough tantrum recently, Mama had tried all of the usuals, and they weren’t working.  I had an idea!  I love when that happens!  When you are just at the end of your rope with nowhere to go – poof, out of sky this remarkable idea falls.  This makes Mami very happy.

Anyway, have you ever seen a gorilla nest?  I know more about them than I need to, thanks to my little animal-loving friend    🙂

Gorillas build a nest in the trees, and then they retire to it about a 1/2 hour before the sun sets.  It looks so comforting, relaxing and enveloping – ooh, very beneficial for someone who is spiraling out of control!  lol

I stopped in the middle of my “breathe” “drink water” “sit with me and calm down” routine, and I just DUMPED a butt load of beanie babies onto my thrashing boy!

He stopped and looked at me curiously, like “what the hell is this lunatic doing to me?”  Then…he smiled.

I got the big quilt.  I threw that on top of him, and then I dumped another bucket of the beanies.  Next, I surrounded him with about 20 pillows, and then I packed on more weight with another bucket of the babies.

“I’m making you a gorilla nest,”  I declared.

“A calm down nest,”  he said, finally relaxed and satisfied.

He climbed out to give me a kiss, and then he buried himself back in.  He poked his head out and stared at me in relief for a minute.

I got it, and he was so grateful.

Nothing else in life compares to that feeling.

WHAT DO YOU LIKE?

Ro loves this game, and I love playing it with him!  SO amazing to hear what is flying around in that fantastic brain!

Ro:  Mom, what do you like best about yourself?

Mama:  Do you mean how I look or how I am?

Ro:  How you are.

Mama:  I like that I can love a lot.  What do you like best about yourself Ro?

Ro:  I like that I’m nice…and I like my hair.

LOL!!! I’m so in love with him.

I never imagined that we would see the day when Ro was asking and answering such abstract questions.  It’s enough to make a Mama cry like a whiny Caillou!!!

BEACH BUDDIES!

Barnacles, giant rocks, tide pools and huge spans of sand…what more is needed for some fun times?!  Maybe some food, drink and a change of clothes – we had that too.  A great day.

And man, their butts slept that night!

MAMA’S BOYS CAN HIKE!

New England has some incredible hiking to be discovered.  Hiking has always been Mama’s all-time favorite outdoor activity, and now I can enjoy it with my boys!!  They LOVE it!

It’s SO amazing to have them be at an age now where they can climb mountains and follow trails with me!!  I think this is my favorite time in parenting them so far.

They are crazy good at scaling rock faces and sliding down crevasses too! LOL   You can’t hike a flat trail with them – must be steep inclines and rough terrain!

And they even hold onto a beanie baby while they climb!!!

My boys are cool…

Ro and Lowie hike the Fells.

SCERTS = Interesting!

Description from the SCERTS website (click link below).   Sounds really interesting!  Mama has to investigate more.

The SCERTS® Model is a research-based educational approach and multidisciplinary framework that directly addresses the core challenges faced by children and persons with ASD and related disabilities, and their families. SCERTS® focuses on building competence in Social Communication, Emotional Regulation and Transactional Support as the highest priorities that must be addressed in any program, and is applicable for individuals with a wide range of abilities and ages across home, school and community settings.

http://scerts.com/

Behavioral and Disorder. Two Words that Don’t Belong with Autism.

Mama does not like the words “behaivoral” or “disorder.”  It’s time to smack those negative associations down when referring to autism.  Smack them down!!!  lol

You would be surprised at how many people still think of autism as a behavioral disorder, a mental illness or even refer to autism using the “R” word – which Mama hates SO much, that I won’t even reproduce it in reference for you – you can figure it out, I’m sure.  I tell people this all the time, and they are always surprised – Autism is a NEUROLOGICAL condition.   Yes.

Snackie and I were having a long discussion while watching the Oscars the other night (which I thought were really good this year, but that’s for another post) and we were griping about how even the words “Autism Spectrum Disorder” have such negative connotation to them.  We need to come up with another way to talk about this!

I’m not saying autism is a walk in the park for anyone touched by it, but the way some view the words associated with the labels, the depreciating way that someone with autism is sometimes viewed – well, Mama doesn’t like that!  I’m sure other individuals with autism don’t love it either.

First, we need to throw “disorder” out.  Does this mean that any pain suffered by those with autism or their families should be discounted?  No, but we don’t say Cancer Disorder, do we.  The person who has the cancer is not defective, it’s the cancer itself that is causing the pain.

Then, even the word autism is looked at in a negative light.  Like Mama said, so many people have no idea what autism really is, and they just assume that this means a child with a behavioral problem, or that the child is that stupid “R” word.  They assume that they are intellectually “less than.”  And Mama doesn’t like that reference for anyone, regardless of whatever “label” that individual has been “crowned with” from our society.

We ended up enjoying “Spectrum Processing.”  We thought it was important for the individual with autism to be able to categorize their challenges for themselves, but by doing so in a way that wouldn’t depreciate them.

Scientist Carl thinks that we should add another word to make it an even three-letter acronym, like HBP or ESP, because it’s easier for people to reference that way.

Mama has to think more about that one.  Hmm.

Click the link below for a good site to dispel some autism myths…

http://www.ninds.nih.gov/disorders/autism/detail_autism.htm

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